Writing Exchange

Colin-Roy HunterIf you have any kind of <a href="https://mstdn.social/tags/neurological" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neurological</a> condition (e.g. <a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a>, <a href="https://mstdn.social/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a>, <a href="https://mstdn.social/tags/pwMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwMS</a>, etc.) or are a <a href="https://mstdn.social/tags/carer" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#carer</a> for someone with such a condition, please consider completing the anonymous 2024/5 survey.Powered by <a href="https://mstdn.social/tags/SnapSurveys" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SnapSurveys</a>:<a href="https://revealingreality.welcomesyourfeedback.net/s/xpiun1" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://revealingreality.welcomesyourfeedback.net/s/xpiun1</a>

Colin-Roy HunterFirst time since my bout of ‘flu back in mid-Sept. that I have been able to complete a hard <a href="https://mstdn.social/tags/sudoku" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#sudoku</a> (achievement confirmed in image). As a <a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> & a <a href="https://mstdn.social/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a>, I use these puzzles to judge how my mind is on any given day: if I cannæ solve a hard one, then I know I am brain-fogged and thus am aware not to do anything too taxing mentally or that requires physical co-ordination (the <a href="https://mstdn.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#dysautonomia</a> is worse when suffering <a href="https://mstdn.social/tags/BrainFog" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#BrainFog</a>). Feeling chipper! Ha ha ha

Kirsty<a href="https://infosec.exchange/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fibromyalgia</a> <a href="https://infosec.exchange/tags/PWFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PWFM</a> leads to higher infection and death rates, using newer diagnostic criteria.<a href="https://www.bmj.com/company/newsroom/fibromyalgia-linked-to-heightened-risk-of-death/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.bmj.com/company/newsroom/fibromyalgia-linked-to-heightened-risk-of-death/</a><a href="https://infosec.exchange/tags/BMJ" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#BMJ</a> <a href="https://disabled.social/@ahimsa_pdx" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@ahimsa_pdx</a> <a href="https://disabled.social/@tomkindlon" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@tomkindlon</a>

Colin-Roy Hunter<a href="https://mastodon.ie/@MarkMaguire" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@MarkMaguire</a> <a href="https://mastodon.online/@kevinteljeur" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@kevinteljeur</a> <a href="https://mastodon.ie/@SarahDelahunty" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@SarahDelahunty</a> <a href="https://mastodon.ie/@lucyweirphd" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@lucyweirphd</a> I am still on Twitter because more <a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> & <a href="https://mstdn.social/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a> & <a href="https://mstdn.social/tags/pwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwLC</a> and <a href="https://mstdn.social/tags/disabilities" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disabilities</a> in general are over there. I have been connecting slowly with folk here, but, with one or two wonderful exceptions, there is almost no interaction here. I am <a href="https://mstdn.social/tags/housebound" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#housebound</a> & <a href="https://mstdn.social/tags/bedridden" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#bedridden</a>: SM is my only social-life, or help-point. Unless matters deteriorate drastically it is unlikely that many <a href="https://mstdn.social/tags/disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disabled</a> groups will move elsewhere.

Colin-Roy HunterPerhaps I ought to have elucidated that this is not solely for <a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a>, but also those with <a href="https://mstdn.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://mstdn.social/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a>, <a href="https://mstdn.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://mstdn.social/tags/pwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwLC</a>, <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostViralFatigueSyndrome</a> <a href="https://mstdn.social/tags/PVFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PVFS</a>, etc. as well as healthy folk to act as <a href="https://mstdn.social/tags/controls" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#controls</a>. Please consider signing up. There is no guarantee one will be selected, but the act of volunteering lends support to this much-needed effort. 🙏🏻🌈💕

Colin-Roy HunterI have signed up to <a href="https://mstdn.social/tags/OpenMedicineFoundation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#OpenMedicineFoundation</a>‘s volunteer research-participant register, <a href="https://mstdn.social/tags/StudyME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#StudyME</a> , whereby scientists can locate potential contributors. The sign-up takes approximately five minutes.I have <a href="https://mstdn.social/tags/SevereME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SevereME</a> and the last page of text was the most difficult & time-consuming section for me to follow.<a href="https://mstdn.social/tags/InternationalMEAwarenessMonth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#InternationalMEAwarenessMonth</a> <a href="https://mstdn.social/tags/MEAwarenessMonth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEAwarenessMonth</a> <a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://mstdn.social/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a> <a href="https://mstdn.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://mstdn.social/tags/PVFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PVFS</a> <a href="https://mstdn.social/tags/PostViralFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostViralFatigueSyndrome</a><a href="https://www.omf.ngo/studyme/" rel="nofollow noopener noreferrer" target="_blank">https://www.omf.ngo/studyme/</a>

Colin-Roy Hunter“Welcome to the club! <a href="https://mstdn.social/tags/Brainstem" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Brainstem</a> abnormalities now join the list of other issues ( <a href="https://mstdn.social/tags/EBVReactivation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EBVReactivation</a>, <a href="https://mstdn.social/tags/CPET" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CPET</a> abnormalities, small fiber <a href="https://mstdn.social/tags/neuropathy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neuropathy</a>, <a href="https://mstdn.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#dysautonomia</a>, low <a href="https://mstdn.social/tags/cortisol" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#cortisol</a>, symptoms, etc.) that are linking <a href="https://mstdn.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> and <a href="https://mstdn.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> together ever more tightly.”<a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mstdn.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://mstdn.social/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a> # <a href="https://www.healthrising.org/blog/2023/04/20/chronic-fatigue-syndrome-long-covid-brainstem/" rel="nofollow noopener noreferrer" target="_blank">https://www.healthrising.org/blog/2023/04/20/chronic-fatigue-syndrome-long-covid-brainstem/</a>

Colin-Roy HunterRemembering twelve years ago today being able to read not one but two books in the same day! Now I am limited to reading webcomics and small snippets of text. As dancing was my favourite physical activity, reading was my fave cerebral pastime. This malfunctioning body has taken too much joy from my existence.<a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mstdn.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://mstdn.social/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a> <a href="https://mstdn.social/tags/Osteoarthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Osteoarthritis</a> <a href="https://mstdn.social/tags/pwOA" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwOA</a>

Colin-Roy HunterPlus getting back into bed. Then even drinking requires two handed co-ordination so as to minimise spillage from shakes & spasms. I also recalled to select a biscuit, so I not only drank but also had sonething to eat!<a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mstdn.social/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a> <a href="https://mstdn.social/tags/PwOA" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwOA</a>

Colin-Roy HunterFor the first time in a couple of weeks or so I managed to make myself a hot-drink via the Senseo in housemate’s room. It requires:a return hobble of no more than 10 metres; selecting drink; selecting cup; loading machine; selecting programme; instigating drink-making; trying not to fall down whilst waiting; switching off Senseo; opening lid to air; picking up cup; then transferring back to my room without spilling.Plus getting back into bed.<a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mstdn.social/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a> <a href="https://mstdn.social/tags/PwOA" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwOA</a>

Colin-Roy HunterIf one has <a href="https://mstdn.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> &/or <a href="https://mstdn.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://mstdn.social/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a>, then you may wish to read <a href="https://mstdn.social/tags/CortJohnson" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CortJohnson</a> ’s latest article on <a href="https://mstdn.social/tags/HealthRising" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HealthRising</a> for some positive news…<a href="https://www.healthrising.org/blog/2023/04/14/chronic-fatigue-fibromyalgia-researchers-wins/?fbclid=IwAR3bzEPATwVLRgRqaBSXyIJUyfl03EAEr_xrdY0RB-MP89MwBeoEogNatJQ" rel="nofollow noopener noreferrer" target="_blank">https://www.healthrising.org/blog/2023/04/14/chronic-fatigue-fibromyalgia-researchers-wins/?fbclid=IwAR3bzEPATwVLRgRqaBSXyIJUyfl03EAEr_xrdY0RB-MP89MwBeoEogNatJQ</a>

Colin-Roy Hunter<a href="https://aus.social/@Splodgenoodles" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@Splodgenoodles</a> I also am officially diagnosed as a <a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a>, a <a href="https://mstdn.social/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a> & a <a href="https://mstdn.social/tags/pwOA" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwOA</a> inter alia other maladies. I both hear & feel you. {{{gentle}}}

Colin-Roy HunterLack of services provided by <a href="https://mstdn.social/tags/NHS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NHS</a> for <a href="https://mstdn.social/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a> i.e. <a href="https://mstdn.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> (another of my conditions). I can honestly say that other than an ill-fitting (thus useless and so did not help!) neck-brace, I have received no specific treatment or medication for my illness from primary- or secondary-care.Link to UK’s <a href="https://mstdn.social/tags/NHE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NHE</a> website:<a href="https://www.nationalhealthexecutive.com/articles/need-better-fibromyalgia-services-highlighted-new-study" rel="nofollow noopener noreferrer" target="_blank">https://www.nationalhealthexecutive.com/articles/need-better-fibromyalgia-services-highlighted-new-study</a>

Colin-Roy Hunter<a href="https://mastodonapp.uk/@jlthoughts" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@jlthoughts</a> I am inter alia a <a href="https://mstdn.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mstdn.social/tags/SevereME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SevereME</a> & <a href="https://mstdn.social/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a> and I have a blog. I try to publish several blog-posts each year as energy & cognition permit. Please share the link to your blog - once published - as I am happy to share. 🙏🏻🌈💕🤓💙

Colin-Roy HunterObviously, my <a href="https://mastodon.lol/tags/disabilities" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disabilities</a> as inter alia a <a href="https://mastodon.lol/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a>, <a href="https://mastodon.lol/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a> & <a href="https://mastodon.lol/tags/pwOA" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwOA</a> mean it may take me some time to transfer lists of followers, etc. In the meantime, feel free to follow me at <a href="https://mstdn.social/@criquaer" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@criquaer@mstdn.social</a> For the time being, I shall cross-post toots until I have fully moved over to my new instance. Hopefully I shall not break the rules too often - it won’t be deliberate if I do! 🙏🏻🌈💕🤓💙

Colin-Roy HunterAs inter alia a <a href="https://mastodon.lol/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a>, <a href="https://mastodon.lol/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a> & <a href="https://mastodon.lol/tags/pwOA" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwOA</a> apart from physical issues my cognitive abilities are severely impaired. <a href="https://mastodon.lol/tags/Dyscognition" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Dyscognition</a> aka <a href="https://mastodon.lol/tags/BrainFog" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#BrainFog</a> or <a href="https://mastodon.lol/tags/FibroFog" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FibroFog</a> means I cannot consistently act as might be expected. It transpires I am too <a href="https://mastodon.lol/tags/disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disabled</a> for disabled.social, as their list of rules & regs is rather large, and I have no hope of fulfilling their requirements on a regular basis. I have opted for mstdn.social which has a much shorter list of required behaviours. Now <a href="https://mstdn.social/@criquaer" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@criquaer@mstdn.social</a>

Colin-Roy HunterOver several weeks I composed a letter to the social-worker who has taken over my case, as they wanted to know about my abilities to communicate. I have now published the (redacted) letter on my blog, entitled “Communications Difficulties with Severe <a href="https://mastodon.lol/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a>” as it may be useful to other <a href="https://mastodon.lol/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> / <a href="https://mastodon.lol/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a>. <a href="https://mastodon.lol/tags/SevereME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SevereME</a>Link to my blog on <a href="https://mastodon.lol/tags/Blogger" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Blogger</a> :<a href="https://crippledqueeranglo-europeanranter.blogspot.com/2023/02/communications-difficulties-with-severe.html" rel="nofollow noopener noreferrer" target="_blank">https://crippledqueeranglo-europeanranter.blogspot.com/2023/02/communications-difficulties-with-severe.html</a>

Colin-Roy HunterThis item will be of interest to those suffering from <a href="https://mastodon.lol/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> ( <a href="https://mastodon.lol/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> ), <a href="https://mastodon.lol/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> ( <a href="https://mastodon.lol/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a> ) or both, as in my case. “In this study, the discovery of differential circulating <a href="https://mastodon.lol/tags/miRNA" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#miRNA</a> expression signatures associated with <a href="https://mastodon.lol/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a>, FM and ME/CFS + FM groups further supports that ME/CFS and FM are two distinct related illnesses.”<a href="https://www.nature.com/articles/s41598-023-28955-9#Sec8" rel="nofollow noopener noreferrer" target="_blank">https://www.nature.com/articles/s41598-023-28955-9#Sec8</a>

Colin-Roy Hunter<a href="https://mastodon.lol/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mastodon.lol/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a> <a href="https://mastodon.lol/tags/pwOA" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwOA</a> <a href="https://mastodon.lol/tags/SevereME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SevereME</a>Do other folks experience some pains as sounds? For me some hum, others have a high-pitched whistling-sound.<a href="https://mastodon.lol/tags/Pain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Pain</a> <a href="https://mastodon.lol/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicPain</a>

Colin-Roy HunterSince <a href="https://mastodon.lol/tags/carers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#carers</a> stopped coming in early Dec., I leave my bed even more rarely as donæ feel safe if no-one around or due to be. Had my first <a href="https://mastodon.lol/tags/fall" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fall</a> of 2023 en route to wc. No damage done. Just a tad shaken. 🙏🏻<a href="https://mastodon.lol/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mastodon.lol/tags/pwFM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwFM</a> <a href="https://mastodon.lol/tags/pwOA" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwOA</a> <a href="https://mastodon.lol/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://mastodon.lol/tags/SevereME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SevereME</a> <a href="https://mastodon.lol/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://mastodon.lol/tags/OsteoArthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#OsteoArthritis</a><a href="https://mastodon.lol/tags/SocialCare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SocialCare</a> <a href="https://mastodon.lol/tags/SocialCareCrisis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SocialCareCrisis</a>

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